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Sudden unexpected death in epilepsy (SUDEP) is the leading cause of death in young adults who have epilepsy and poorly controlled seizures. Each year, more than 1 out of 1,000 people with epilepsy die from SUDEP, and, if seizures are uncontrolled, the risk increases to more than 1 out of 150. Unfortunately, one-third of people living with epilepsy are faced with ongoing seizures despite all currently available therapies. Individuals who have frequent generalized tonic-clonic seizures appear to be at highest risk.
A widespread lack of awareness and ongoing fear and discrimination lead many individuals to hide their epilepsy and to accept ongoing seizures instead of seeking out more effective treatments. Additionally, because they do not understand that epilepsy can be life threatening, many do not adhere to their treatment plan to obtain complete seizure control – which is zero seizures. Many individuals with epilepsy may not achieve maximal seizure control because of lack of access to best therapies, poor adherence to prescribed therapies, or lifestyle factors that may provoke seizures. These circumstances and behaviors increase their risk of continued seizures, injuries, and SUDEP.
The Epilepsy Foundation SUDEP Institute is challenging Solvers to come up with ideas for a method/intervention to reduce the risk of seizures, especially convulsive or tonic-clonic seizures, with the purpose of preventing SUDEP. Can you help us create a tool to empower more people with epilepsy to improve seizure control?
This Challenge requires only a written proposal.
DEADLINE: Oct 13 2015 Project Rooms 282 Aug 14 2015