FitnessDecember 23, 2016
Better Late Than Never: On Being Diagnosed with Cystic Fibrosis at 33
In a truly person-centered health system, my clinicians would have asked a lot more questions a lot earlier
Stories by Alexandra C.H. Nowakowski
Alexandra "Xan" C.H. Nowakowski is a medical sociologist and public health program evaluator who studies patterns and disparities in how people age with complex chronic conditions. Dr. Nowakowski serves as the evaluator for the Florida Asthma Program, helps to lead FSU COM's new Aging Research Institute, and volunteers with a variety of initiatives focused on health equity and patient advocacy. Along with their spouse Dr. J Sumerau, Dr. Nowakowski founded Write Where It Hurts, an advocacy project for scholars doing trauma informed research. Visit WWIH online at writewhereithurts.net.