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Stories by Judy Stone

Drug screens-any more than theater?

I’ve been doing a lot of traveling recently, and am increasingly disturbed by the growing surveillance society and the misplaced reassurances that are used to assuage the public, coined “security theater” by Bruce Schneier...

February 19, 2013 — Judy Stone

Prosecutorial Excess: A Pattern of Abuse

I continue on break from the UMN Markingson story as I try to make sense—although there appears none to be had—of the tragic death of Aaron Swartz. I am haunted and infuriated by the senselessness of his death and his persecution by overzealous prosecutors...

January 24, 2013 — Judy Stone

An Elegy for Aaron

This post is in honor of Aaron Swartz. I had long considered posting my book as open access but had hesitated in doing so, even though I have long been an enthusiast about OLPC and Creative Commons...

January 14, 2013 — Judy Stone

A Clinical Trial and Suicide Leave Many Questions: Part 3: Conflict of Interest

We’ve touched on some of the many disturbing things that happened during the clinical trial on which Dan Markingson committed suicide. In my first post, I asked how a psychotic, homicidal patient who was involuntarily hospitalized in a psychiatric hospital could give an informed consent for participation in a clinical trial...

December 18, 2012 — Judy Stone

A Clinical Trial and Suicide Leave Many Questions: Part 2: Investigator Responsibilities

There are many disturbing things that happened during the clinical trial on which Dan Markingson committed suicide. Besides the issue of consent, or lack thereof, which I raised in my last post, one of the most disturbing aspects to me has been the lack of accountability and the apparent violations of clinical practice standards, with no consequences. Zero accountability is how I have come to understand the outcome of this CAFÉ trial. Clinical Research Standards—in TheoryDespite sensationalistic trials gone wrong, there are actually principles for “Good Clinical Practice,” and numerous guidelines for the ethical conduct of clinical trials...

December 13, 2012 — Judy Stone

A Clinical Trial and Suicide Leave Many Questions: Part 1: Consent?

 The suicide of Dan Markingson, a 26 year old man participating in a psychiatric trial, has again made the news, and will serve us for a life-time of study and discussion of research ethics, along with the TeGenero and Jesse Gelsinger cases. Markingson began to show signs of paranoia and delusions in 2003, believing that he needed to murder his mother...

December 11, 2012 — Judy Stone

From the Holocaust to Thalidomide: A Nazi Legacy

I was attending World Federation of Jewish Child Survivors of the Holocaust and Descendants 24th Annual International Conference in Cleveland last week, when my aunt, herself a survivor, handed me a copy of Newsweek with a cover article, “The Nazis and Thalidomide: The Worst Drug Scandal of All Time." The story was prompted by the drug developer, Germany’s Grünenthal, unexpectedly issuing an apology to the victims of its teratogenic drug—babies who sustained life-long wounds inflicted by their drug more than 50 years earlier.I’ve written some about thalidomide previously, in my initial Clinical Trials for Beginners posts, (here and here)...

November 8, 2012 — Judy Stone

An Emergency Room's Closure: A Community's Betrayal

Although I've been busy traveling again, the struggle of the Boothbay peninsula communities to keep their hospital remains constantly on my mind. I've written two letters to the editor of the Boothbay Register*, which I am reproducing here to update my readers, as this is an example of broader David and Goliath healthcare struggles and a case study of a crisis in rural healthcare.The proposed closure of the ER is scheduled for April, 2013...

October 26, 2012 — Judy Stone

Book Review: The Breast Cancer Checklist

This is “Breast Cancer Awareness” month, the much-hyped recognition of a serious problem that we should be conscious of throughout the year. The associated “pink ribbon” campaign sometimes feels akin to a “Hallmark holiday" sales gimmick, rather than recognition of the pain of breast cancer and need for further research...

October 11, 2012 — Judy Stone

Drugs in Search of a Disease Pharma Targets Women

Last week I focused on drug advertisement for “Low T” catching up with all the attention given to menopausal women with declining hormones. But women still are the primary targets for pharmaceutical advertising, in part because they can be captured for multiple products—if not quite from the cradle, at least from puberty, through pregnancy, to menopause and to grave.What are some of the consequences of this relentless focus on women’s hormones and common symptoms?...

October 2, 2012 — Judy Stone

Big Fish Eats Little Fish- Warning for Rural Hospitals

St. Andrews Hospital, Boothbay Harbor, Maine update.In my previous post, I outlined the looming menace to tiny St. Andrews hospital in Boothbay Harbor, Maine.I’ve met with one Lincoln County Healthcare (LCH) executive, Dr...

September 25, 2012 — Judy Stone

Drugs in Search of a Disease-Men s Edition

In one sense, it is refreshing to see men being the target of pharma, after all these years of women being the focus of relentless—and misleading—advertising.

September 13, 2012 — Judy Stone

Hurricanes, Poverty, and Neglected Infections

This week, the anniversary of Hurricane Katrina, is always a time for me for reflection on poverty and justice in America. Katrina brought focus to our country’s disparities and the response—or lack thereof—to disasters...

August 30, 2012 — Judy Stone
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